Taiwan group to attend U.N.-affiliated meeting on rare diseases

A Taiwan non-governmental organization dedicated to rare diseases has been invited to share its experience at an international meeting inaugurating the U.N.-affiliated NGO Committee for Rare Diseases in New York on Friday.

Tseng Min-chieh (???), chairman of the Taiwan Foundation for Rare Disorders, will give a keynote speech at the Global Gathering for Rare Diseases and explain how Taiwan can contribute to the United Nations' 2030 Agenda for Sustainable Development.

Tseng, who is also a professor in National Taipei University's Department of Social Work, said he will share the foundation's experience in serving patients with rare diseases and present his suggestions on how the United Nations can promote related issues.

He said the foundation's presence at the meeting represents considerable recognition for Taiwan, which has long been marginalized from the international arena.

The foundation was co-founded by Tseng in 1999.

Thanks to efforts made by the foundation, a law on the prevention and control of rare diseases was enacted last year, and patients are also covered by Taiwan's national health insurance system.

Source: Focus Taiwan News Channel